May 23, 2001

Corrine’s Pride
59 Cranford Court
Staten Island, NY 10306

Steve & Colleen,

When Annette and I decided to form Natalie’s Way Foundation, Corrine’s Pride was part of our inspiration to take on that challenge. We felt admiration to both of you for not sitting idle and waiting for a cure, you stepped up to the plate and you are making a difference. We feel connected to you both, of course Natalie’s condition of Albinism is not as serious as Cystic Fibrosis, but we are both working hard to make a difference in our daughter’s lives.

Natalie’s condition is called Oculocutaneous Albinism (OCA). Children born with OCA have little or no pigment in the eyes, skin and hair. They have inherited from their parents an altered gene that does not allow the body to make the normal quantities of a pigment called melanin. Melanin is used to absorb ultraviolet light from the sun and protects the skin from being damaged. Melanin pigment is also present in the fovea of the eyes and helps the fovea to develop correctly. The nerve connections between the retina and the brain can also be altered if melanin pigment is not present in the retina during its development. In most cases OCA is so severe that the condition leaves the child legally blind.

When forming Natalie’s Way Foundation our main attention was focused on Albinism research, but Annette and I knew that we would want to provide support for worthy local charities, like Corrine’s Pride. Recently, we held our first annual Natalie’s Way Foundation Golf Benefit on April 25, 2001; our benefit was a huge success raising more than $25,000 for our cause. A large percentage of the money raised was sent to two research facilities in San Diego and Minnesota for Albinism and children with eye disorder research and a small percentage is held over for local charities.

On behalf of Natalie’s Way Foundation, it is our pleasure to present Corrine’s Pride with the enclosed check for $1,000 to help find a cure for Cystic Fibrosis. We applaud you for your efforts and look forward to supporting your cause in future benefits.

Sincerely,

Robert Stasi,
President
Natalie’s Way Foundation

For more information: http://www.corinespride.org