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May 23, 2001
Corrine’s Pride
59 Cranford Court
Staten Island, NY 10306
Steve & Colleen,
When Annette and I decided to form Natalie’s Way Foundation, Corrine’s
Pride was part of our inspiration to take on that challenge. We felt
admiration to both of you for not sitting idle and waiting for a cure, you
stepped up to the plate and you are making a difference. We feel connected to
you both, of course Natalie’s condition of Albinism is not as serious as
Cystic Fibrosis, but we are both working hard to make a difference in our
daughter’s lives.
Natalie’s condition is called Oculocutaneous Albinism (OCA). Children born
with OCA have little or no pigment in the eyes, skin and hair. They have
inherited from their parents an altered gene that does not allow the body to
make the normal quantities of a pigment called melanin. Melanin is used to
absorb ultraviolet light from the sun and protects the skin from being
damaged. Melanin pigment is also present in the fovea of the eyes and helps
the fovea to develop correctly. The nerve connections between the retina and
the brain can also be altered if melanin pigment is not present in the retina
during its development. In most cases OCA is so severe that the condition
leaves the child legally blind.
When forming Natalie’s Way Foundation our main attention was focused on
Albinism research, but Annette and I knew that we would want to provide
support for worthy local charities, like Corrine’s Pride. Recently, we held
our first annual Natalie’s Way Foundation Golf Benefit on April 25, 2001; our
benefit was a huge success raising more than $25,000 for our cause. A large
percentage of the money raised was sent to two research facilities in San
Diego and Minnesota for Albinism and children with eye disorder research and a
small percentage is held over for local charities.
On behalf of Natalie’s Way Foundation, it is our pleasure to present
Corrine’s Pride with the enclosed check for $1,000 to help find a cure for
Cystic Fibrosis. We applaud you for your efforts and look forward to
supporting your cause in future benefits.
Sincerely,
Robert Stasi,
President
Natalie’s Way Foundation
For more information:
http://www.corinespride.org |